Illness, Pain, Misdiagnosis & Denial

Gayle DeVilbiss, a 54 year-old woman in Arizona, was originally diagnosed with fibromyalgia back in 2007.  She applied for Social Security benefits and was denied. Then, after various treatments and further study, Ms. DeVilbiss learned that she was actually suffering from Non Hodgkin’s Lymphoma, a serious form of cancer requiring chemotherapy and other long-term treatments.

After starting her regimen of routine treatments, her immune system became depleted and she needed more medication to keep her healthy while the chemotherapy went to work destroying the cancer cells.  Soon the pain set in.  Nausea, fatigue and other physical ailments only added to the mental and emotional anxiety and constant worry.

Understandably, Ms. DeVilbiss was completely unable to work.  Once again, she applied for Social Security Disability benefits, but within weeks she received a notice indicating that her disability benefits were denied based on the fact that her regimen of treatment is not expected to last more than 12 months.

The law as currently written states that a person is eligible for Social Security disability benefits if that person suffers from a severe impairment, is unable to work because of the severe impairment, and the impairment is expected to last for at least 12 months or result in death.

In her video to the president, Ms. DeVilbiss states, “I just don’t understand what [diagnosis] you have to have to get Social Security disability. I can’t work right now. I may be able to work in a year, I don’t know. I may be able to work six months from now.  But right now I can’t work. “

“I don’t feel 100 percent. I don’t feel seventy five percent, and I don’t feel even fifty percent of what I used to feel. I just need some help now”, she contined.

The sad truth is that there is no employer that would knowingly employ a person with the current diagnosis and set of symptoms displayed by this woman.  In an interview with a local news station, Ms. DeVilbiss pointed out that she’s constantly fatigued and most days has to be on oxygen; a result of her treatment program for the cancer.

There are no easy answers, it’s true.  However, we can’t ignore situations such as these. Confronting flaws and shortcomings in the Social Security programs is the only way to really incite change and improvement in the government services that we all sacrifice to support.

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